Category Monthly data 2013

Graphing Stoicism February 2013

affect feb2013

Week by week February 2013, values on the Y axis, months along the X
You should be able to see an interactive version of this chart here:

Illness what illness: 9-10,
I feel fine: 7-8
Grin and bare it 5 – 6
Stiff upper lip: 4
Wobbly lip: 2-3
I don’t want to talk about it: 1

PAD Cycle 2 February 20th 2013 UCLH Cancer clinic

My fist cycle of PAD finished last week and PAD cycle 2 started yesterday. A cycle is around a month so I’m into week 5 of the 8 weeks of treatment.


In cycle 1 I’ve had mild only mild side effects and apart from a bit of tiredness in the afternoonsDexamethasone only mild passages of nausea and no actual sickness. I’ve had some mild neuropathy but noting dehabilitating. My hair has dropped like a Christmas tree’s needles on boxing day but I was expecting that.

Aside from afternoons, I’m or less working as normal.

For the uninitiated PAD is a treatment protocol consisting of 3 chemo and steroid drugs: adriamycin, velcade and dexamethasone. Dex is a steroid which I take in huge doses over the first few days of treatment. It turns you into a bit of a nutter by turns gregarious and hypersensitive (dex rage).

You don’t get much sleep.

Expect lots of late night posting.

Paraprotein levels February 14th

Paraprotein = 0

No detectable level after bone marrow test and bence jones urine test. Good.

Summary January 2013

January is a month of tests; my treatment also started.

chemo drugs

I have been turned into a human pincushion; I have consumed over 3 k worth of cancer drugs; I have been biopsied and had a very nice doctor dig around in the bone marrow in my hip; I have been infused with various toxins: Adriamycin, Velcade, Dexamethasone. I take a number of drugs to alleviate nausea and to prevent my immune system from collapsing. I rattle like something that rattles a lot.

All the data files, documentary images and graphing referencing the above you’ll find below this post.

1. bence jones urine test over 24 hour period. 2. bone marrow sample.

My mood has been steady aside from a dip around week 3 when I misunderstood something that I read in one of the summary letters received from my specialist which I interpreted as a very poor prognosis. It wasn’t. This also impacted on me physically, I felt out of sorts and my bones grumbled under the extra stress. I also felt less control over things in general. I’m sure I wasn’t good company. My specialist cleared up the misunderstanding and after 2 days of anxiety everything picked up. I should know by now not to go to the Internet.

1. Adriamycin being delivered, 2. Saline drip

Physically I haven’t felt too bad either, I only really started getting side effects at the end of the month and these were very mild. My hair hasn’t dropped out. Yet. I had some mild discomfort in my lower back as my spine was impacted by the MM but the rib pain is barely noticeable now. My neutrophils, Hb, WBC and platelets were steady but slightly dropped in the first week of Feb. Still no news on my urine and bone marrow tests which will show the disease progression more accurately. I’ve continued to work pretty much as normal. I had some work in an exhibition in town. This helps mood and maintains normality despite everything.

More bone marrow samples

January 2013 raw data

Word doc of a CSV will need  to be converted to a txt file

For key to data scoring see templates under the Data Methods menu

mood_jan_13 | discomfort_jan_13 | control_jan_13

urea_jan_13 | Protein_jan_13 | drugs_jan_13 |  full_blood_jan_13

Affect data January 2013

Mood, discomfort and control trackingmood_Jan_13



Medical Data January 2013

Drugs consumed, injected, given by line etc.drugs_jan_2013HaemoglobinHB_Jan_2013NeutrophilsANC Jan 2013Plateletsplatelets Jan 2013 White Blood CountWBC Jan 2013Proteinsproteins_jan_2013Urea, Calcium, Creatineurea_jan_13

Costs to the NHS of my drugs first cycle of treatment Jan – Feb 2013

 chemo first cycle

Velcade 3.5mg vial, with an NHS cost of £762.38/vial.

I’ve had 4 injections this month so that adds to:   £3049.52

Dexamethasone 160mg                                                  £10.83* approx. costs

Adriamycin 68mg                                                          £187

Zometa 4mg                                                                   £17.17

Cost of supporting drugs

Lansoprazole 2 mg                                                       £1.86

Co-trimoxazole 960 mg                                               £7.06

Aciclovir 200 mg                                                         £12.50

Allopurinol 300 mg                                                     £1.06

Domperidone 10 mg                                                   13.88

Total drugs cost first cycle:                                £ 3300.88   

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