Tag Daily data summary

PAD Cycle 2 February 20th 2013 UCLH Cancer clinic

My fist cycle of PAD finished last week and PAD cycle 2 started yesterday. A cycle is around a month so I’m into week 5 of the 8 weeks of treatment.

PAD_2

In cycle 1 I’ve had mild only mild side effects and apart from a bit of tiredness in the afternoonsDexamethasone only mild passages of nausea and no actual sickness. I’ve had some mild neuropathy but noting dehabilitating. My hair has dropped like a Christmas tree’s needles on boxing day but I was expecting that.

Aside from afternoons, I’m or less working as normal.

For the uninitiated PAD is a treatment protocol consisting of 3 chemo and steroid drugs: adriamycin, velcade and dexamethasone. Dex is a steroid which I take in huge doses over the first few days of treatment. It turns you into a bit of a nutter by turns gregarious and hypersensitive (dex rage).

You don’t get much sleep.

Expect lots of late night posting.

Daily affect data February 18th 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: illness what illness = 9

Mood: Calm = 6

Control: Some control = 4

Discomfort: Mild = 2

Daily affect data February 17th 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it = 5

Mood: Subdued = 5

Control: Some control = 5

Discomfort: Moderate = 4

Daily affect data February 13th 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism = Stiff upper lip = 4

Mood: Calm = 6

Control: Some control =  5

Discomfort: Moderate = 4

Stoicism index

I have created a new daily data type: Stoicism

These are the parameters scored  1-10:

Illness what illness: 9-10

I feel fine: 7-8

Grin and bare it: 5- 6

Stiff upper lip: 4

Wobbly lip: 2-3

I don’t want to talk about it: 1

Today my stoicism is: Stiff upper lip or a 4