Category Daily data summary

Hat index 26th June 2013

Hat: Blue beat Mod

blue beat-mod

Daily affect data 26th June 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: I feel fine: 7

Mood: felt calm ≈ 6

Control: Some controll = 5

Discomfort: mild = 2

Daily affect data 25th June 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 5

Mood: felt calm ≈ 6

Control: A little controll= 3

Discomfort: mild = 2

Things happen 7, June 24th 2013

So today, I had my stem cells collected. Again. After 4 days of high does G-CSF injections, I managed to squeeze out 2.1 million stem cells. This is enough for a transplant. If I’d managed 4 million I could have put some on ice for a possible 2nd transplant at some point in the future. This will do though. In contrast to the previous collection, I didn’t suffer ‘child birth level’ pain, but I did come home feeling pretty ropey. I now wait to see when I’ll be scheduled for their return.

For more detail about this process have a look at my previous post on the topic.

here

Here’s the data:

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 5

Mood: felt calm ≈ 6

Control: No control at all = 1

Discomfort: severe = 6

Daily affect data 23rd June 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: I feel fine: 7

Mood: felt calm ≈ 6

Control: Some controll = 6

Discomfort: mild = 2

Daily affect data 22nd June 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Stiff upper lip: 4

Mood: felt calm ≈ 6

Control: Some controll = 5

Discomfort: Moderate = 6

Daily affect data 21st June 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 5

Mood: felt calm ≈ 6

Control: Some controll = 5

Discomfort: Moderate = 6

Things happen 6, June 20th 2013

 

(image from macmillian cancer research)

Some better news. I was in UCLH to have my PICC line (peripherally inserted central catheters) dressed. This is a tube that’s inserted into your arm and pushed up your vein into your heart. It’s used to administer drugs and take blood tests. I’ll have it until I my stem cell transplant is finished. Anyhow, I got the analysis of the MRI scan back which was good. Previously I’d had evidence of advancing disease (lesions) in my ribs, a couple of places in my spine, hip and left scapular. The stem cell transplant will in theory snuff out the remaining disease… for a bit anyhow.

Bone damage is one of the most widespread side effects of myeloma, here’s a description from the Multiple Myeloma Research foundation:

The most visible aspect of myeloma disease is its effect on bones throughout the body. In the majority of patients with multiple myeloma, soft spots develop where the bone structure has been damaged. These can extend from the inner bone marrow to the outside surface of the bone. Soft spots appear as “holes” on a standard bone x-ray and are referred to as osteolytic lesions (see figure). These lesions weaken the bone, causing pain and increasing the risk of fractures. 

See more here.

The three months of chemo I’d had from January seem to have stopped these developments in there tracks, indicating that the particular form of treatment I had at this time works for me (PAD more here).

Here’s the data:

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 5

Mood: reasonable spirits ≈ 7

Control: Some controll = 5

Discomfort: moderate = 4

Daily affect data 19th June 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 5

Mood: felt calm ≈ 6

Control: Some controll = 5

Discomfort: Moderate = 6

Daily affect data 18th June 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Stiff upper lip: 4

Mood: very low ≈ 2

Control: No control at all = 1

Discomfort: Moderate = 6