Tag affect

Things happen 2, June 10th 2013

uclh, view from the tower

On Sunday morning I came round without pain but running a high temperature and feeling very sick. To cut a long story short I was admitted to the haematology unit at UCLH, put in an isolation room, pumped full of antibiotics and put under surveillance. On Monday I was scheduled to have my stem cells collected, a process, which was now under threat. You can’t have your stem cells collected if you’re carrying an infection as you store it with the stem cells (SC); when you get the SCs back, you get the infection back. I sweated (literally and metaphorically) through Sunday and into the early hours of Monday morning, was administered more antibiotics and slept intermittently. The only upside to admission was I got to check out the isolation accommodation that I will soon be inhabiting once they return the SCs. The rooms are really nice, new build, well appointed with great views as you are up in the tower of UCLH. The above picture shows the view toward the city of London.

Some levity: things doctors say no.1

I was woken at midnight for some blood tests by the on-duty haematologist a nice young chap who asked me the usual questions about how I felt and ran through the litany of disease and treatment I had endured in the recent past: “any serious medical issues then?”

I took it stoically.

Here’s the data.

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 6

Mood: felt subdued 5

Control: No control at all = 1

Discomfort: severe = 8

Things happen 1, June 9th 2013

I haven’t updated for nearly a week because it’s been quite a significant one all things considered. I’ll do this retrospectively but by date. Last weekend I had a high-dose of the mustard gas derived Cyclophosphamide, and in the following days a daily injection of G-SCF – a growth factor that stimulates your stem cells and mobilises them outside of your bone marrow to enable collection. By Friday I had successfully self-administered 6 of these stomach-based injections without drama of any sort. I had been briefed by the CNS (clinical, nurse, specialist) at the Mac (Macmillan Cancer Centre) to expect ‘giving birth levels of pain’ by day 7 as the stem cells were forced out of the bone marrow. In my minds eye, I imagined a collective fist-pump from womankind. Saturday came, and so did the pain as waves of pulsating agony radiating from my lower back. I resorted to codeine, hot water bottles and Hail Marys. I survived but it was quite excruciating. I also realised at this point that my discomfort and control indexes were totally inadequate to capture the levels of pain I experienced. I might have to invent a new one. Anyhow here’s the data from Saturday.

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 6

Mood: Low spirits 4

Control: No control at all = 1

Discomfort: 10 = worst possible

Affect data, 22nd May 2013

Stoicism: Stiff upper lip: 4

Mood: felt subdued 5

Control: A little controll= 3

Discomfort: Moderate = 4

Affect data, 21st May 2013

Stoicism: Wobbly lip: 2

Mood: very low ≈ 2

Control: A little controll= 3

Discomfort: Moderate = 4

Affect data, 20th May 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: I don’t want to talk about it: 1

Mood: very low ≈ 2

Control: No control at all = 2

Discomfort: Moderate = 4

Affect data, 19th May 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: I don’t want to talk about it: 1

Mood: very low ≈ 2

Control: A little controll= 3

Discomfort: Moderate = 6

Affect data, 18th May 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Wobbly lip: 2

Mood: low spirits ≈ 4

Control: A little controll= 3

Discomfort: Moderate = 5

Affect data, 17th May 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Wobbly lip: 2

Mood: low spirits ≈ 4

Control: A little controll= 3

Discomfort: Moderate = 3

Affect data, 16th May 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Stiff upper lip: 4

Mood: felt subdued 5

Control: A little controll= 3

Discomfort: Mild = 2

Affect data, 15th May 2013

For detailed description of parameters see the Data Methods part of this website

Stoicism: Grin and bare it 5

Mood: felt calm ≈ 6

Control: A little controll= 3

Discomfort: Moderate = 4