Category Platelets

Weekly blood counts data March 12th 2013

For detailed description of parameters see the Data Methods part of this website

Haemoglobin: 14.1

White blood cells: 5.19

Platelets: 246

Neutrophils: 298

All in normal range.

Everything a bit uppish.

February round-up 2013

mood percentage Feb 2013

Into the second week of March, and I’ve only just found time to write up February’s summary; which tells us something.

We had the bone marrow and bence jones tests back. Nothing in the bone marrow, no detectable paraprotein levels and no bence jones proteins. My illness only seems detectable in the damage it’s doing to my bone structure through MRI scans.

I’ve been very, very busy at work. I was advised that it was likely that I wouldn’t be able to work through this first period of treatment but I struck lucky (mostly) with the kickback from side effects. I got tired in the afternoons but and had a bit of nausea throughout the month but that’s about it. If anything I worked too hard, took too much on, increased my workload. My inner amateur psychologist suggests this was an attempt to prove to myself and colleagues that nothing is wrong, this is possibly right but I can’t say I’ve been consciously avoiding my illness. Coping mechanisms are complex things though.

Lets look at the data:

I’ve made a decision to keep cumulative graphs of my medical data but not bother with monthly. It makes sense to ascertain long-term trends with important information like this. For the affect data, I’m going to do both monthly and long term with the monthly summaries as percentages. Here we go

Affect analysis

Mood (top image): highest of 8 (cheerful and in good spirits) and a low of 4 (low spirits).

Looking at the percentages the 4 (low spirits) swamps the highs this month by a whopping 29% compared to 3.7%. Most of the time, i.e. 37% I felt calm. I’m quite surprised at how often I did feel in ‘low spirits’; I was also subdued 18.5 % of the time. I thought I’d been coping better than that, but I suppose it’s not surprising when you’ve been told you’ve got incurable cancer. I also think that the amount of work I had on is telling, it takes me away from the creative activity of the type which makes me happy.

Stoicism: a high of 9 (illness what illness) and a low of 3 (wobbly lip)

stoicism percentages Feb 2013

The percentages breakdown are interesting compared to mood and suggest that while my feelings about things are affected, my resilience or ability to cope is good. 40% of the time I’m happy to grin and bare it, 18.5% of the time ‘I feel fine’. 26% of the time I stiffen my lip in the grand British manner. Of course all sorts of constructions can be made about this, including that I suffer a complete inability to face my plight. I prefer to think I’m good at coping and a stubborn bugger though.

Control A high of 7-8 (a good deal of) and a low of 1- 2 (no control),\ both are outliers though with only 3.57%.

Control percentages Feb 2013

The majority of the time I felt ‘some control’ at 53.57% or at least ‘a little’ at 35.7%. These figures do seem to reflect the stoicism index and I draw similar conclusions. Dips and highs reflect times when I’m more creative, overburdened with work, or as is the case here, misinterpreted a medical analysis.


Hat analysis = remarkably well distributed.

Hat percentages Feb 2013My favourite individual hat in terms of style being my Mod hat at 17.9%, followed by the bucket hat at 14.3 %. and ‘no hat’ the same. The beanie hats are cumulatively worn more than any other style, they are convenient more than anything and I wear them inside too.

What to ascertain from what I’m trademarking as the ‘pyschosartorial’ as a nod to pyschogeography? I’m surprised just how often I haven’t bothered to wear a hat at all, because my memory of this is that it was a rarer occurrence than actually the case. I’m wondering if it’s worth cross referencing the hat data to mood to see if there’s any correlation between the two in pyschosartorial terms. Something for the future. The Sindhi Topi was a recent addition so scores low on that count and is not a reflection on preference. More analysis needed here really, but something to watch out for.


Bloods and discomfort analysis

As mentioned previously, I’m only going to track medical and physical data as a cumulative charting.

My bloods (Haemoglobin, White cell count, Neutrophils) all stayed within normal parameters, so despite the hammering the chemo was giving my immune system, it was coping quite well. The discomfort index was similarly stable mostly settling along the 2 – 3 range or mild. There was an up-kick early in the month to 5 (moderate) which coincided with a misunderstanding of a medical diagnosis which put me under enormous physical and psychological stress. Again there is future scope to merge some of this data with the affect information at some point.

Discomfort cumulative Jan - Feb 2013

haemoglobin counts jan-feb

neutrophil counts jan-feb 2013

platelet counts jan-feb 2013

Weekly blood counts data March 6th 2013

For detailed description of parameters see the Data Methods part of this website

Haemoglobin: 13.7

White blood cells: 5.36

Platelets: 208

Neutrophils: 3.27

All in normal range.

Everything a bit downish though.

Weekly blood counts data February 26th 2013

For detailed description of parameters see the Data Methods part of this website

Haemoglobin: 14.2

White blood cells: 7.12

Platelets: 286

Neutrophils: 05.08

All in normal range.

Neuts and platelets all down a bit

Weekly blood counts data February 22nd 2013

For detailed description of parameters see the Data Methods part of this website

Haemoglobin: 13.2

White blood cells: 11.39

Platelets: 291

Neutrophils: 10.42

All in normal range.

Neuts and up which is good.

Weekly blood counts data February 19th 2013

For detailed description of parameters see the Data Methods part of this website

Haemoglobin: 14.9

White blood cells: 8.01

Platelets: 298

Neutrophils: 6.27

All in normal range.

Neuts and all other results up which is good.



Weekly round-up February 17th 2013

Weekly hats week ending Feb 17th 2013

Weekly hats week ending Feb 17th 2013

This was an interesting week and the data gives a good representation of it’s peaks and troughs.

I have been in discussion to exhibit work arising from the project’s data. This made me feel full of energy and generally very creative and happy as can be seen in the highs of mood and stoicism mid-week (8 and 7 respectively). I’m not tracking creativity but if i was it would be an 8 out of 10. Ironically since my illness came back I’ve had more time to make work than before. Shame I had to develop incurable cancer to get into this position.

I have been working a lot on the project which has been great but by the end of the week I was beginning to feel tired and my back is sore, again reflected in the discomfort index which reached 4. This could be because I’ve been sitting down a lot and not getting as much exercise as I should, or it could be a symptom of the illness. I shall have to keep my eye on it.

The beginning of the week was challenging, my hair started coming out in clumps which initially was a bit of a shock (plunges in control and mood indexes). I’ve had what’s left shaved off and developed a hat index to account for the headgear I’ve adopted. I also developed a stoicism index to accompany the other mood and affect indexes.

I finished my first cycle of chemo which was a milestone and to which I have had only mild side effects, and I had an important meeting with my specialist where I got my paraprotein results which were good. No detectable levels (again reflected in higher mood, control and stoicism scores).

The scores on the doors

For the key to these please look at the Data Methods part of this site

Hats: (Beenie grey x 3, Bucket hat x 2, Blue note Mod x 1, Patterned beenie x 1)

Stoicism: a low of 4 (Stiff upper lip) and a high of 7 (I feel fine), mostly 4-5 (stiff upper lip)

Mood: a low of 5 (subdued) and a high of 8 (cheerful and in good spirits), mostly 6 (calm) and 7-8 (cheerful and in good spirits)

Control: a low of 3-4 (little control) and a high of 7 (a good deal of control), mostly 5 (some control ),

Discomfort: a low of 2 (mild) and a high of 4 (moderate). Mostly 4 (moderate)

bone_marrow_6My bloods (Haemoglobin, White cell count, Platelets, Neutrophiils) all stayed stable and in the normal range.

I had the results back from my bone marrow biopsy (image left) and Bence Jones Urine tests, no detectable levels of Paraprotein.

I consumed a total of £771.45 worth of drugs which included chemo and antibiotics.

Thank God for the NHS

Weekly blood counts data 14th February 2013

For detailed description of parameters see the Data Methods part of this website

Haemoglobin: 14.4

White blood cells: 4.95

Platelets: 233

Neutrophils: 3.78

All in normal range.

Neuts up a bit.

Weekly blood counts 12th Feb 2013

For detailed description of parameters see the Data Methods part of this website

Haemoglobin: 14.5

White blood cells: 4.9

Platelets: 244

Neutrophils: 2.22

Neuts down a bit, everything else level or better.

Summary January 2013

January is a month of tests; my treatment also started.

chemo drugs

I have been turned into a human pincushion; I have consumed over 3 k worth of cancer drugs; I have been biopsied and had a very nice doctor dig around in the bone marrow in my hip; I have been infused with various toxins: Adriamycin, Velcade, Dexamethasone. I take a number of drugs to alleviate nausea and to prevent my immune system from collapsing. I rattle like something that rattles a lot.

All the data files, documentary images and graphing referencing the above you’ll find below this post.

1. bence jones urine test over 24 hour period. 2. bone marrow sample.

My mood has been steady aside from a dip around week 3 when I misunderstood something that I read in one of the summary letters received from my specialist which I interpreted as a very poor prognosis. It wasn’t. This also impacted on me physically, I felt out of sorts and my bones grumbled under the extra stress. I also felt less control over things in general. I’m sure I wasn’t good company. My specialist cleared up the misunderstanding and after 2 days of anxiety everything picked up. I should know by now not to go to the Internet.

1. Adriamycin being delivered, 2. Saline drip

Physically I haven’t felt too bad either, I only really started getting side effects at the end of the month and these were very mild. My hair hasn’t dropped out. Yet. I had some mild discomfort in my lower back as my spine was impacted by the MM but the rib pain is barely noticeable now. My neutrophils, Hb, WBC and platelets were steady but slightly dropped in the first week of Feb. Still no news on my urine and bone marrow tests which will show the disease progression more accurately. I’ve continued to work pretty much as normal. I had some work in an exhibition in town. This helps mood and maintains normality despite everything.

More bone marrow samples

January 2013 raw data

Word doc of a CSV will need  to be converted to a txt file

For key to data scoring see templates under the Data Methods menu

mood_jan_13 | discomfort_jan_13 | control_jan_13

urea_jan_13 | Protein_jan_13 | drugs_jan_13 |  full_blood_jan_13

Affect data January 2013

Mood, discomfort and control trackingmood_Jan_13



Medical Data January 2013

Drugs consumed, injected, given by line etc.drugs_jan_2013HaemoglobinHB_Jan_2013NeutrophilsANC Jan 2013Plateletsplatelets Jan 2013 White Blood CountWBC Jan 2013Proteinsproteins_jan_2013Urea, Calcium, Creatineurea_jan_13

Costs to the NHS of my drugs first cycle of treatment Jan – Feb 2013

 chemo first cycle

Velcade 3.5mg vial, with an NHS cost of £762.38/vial.

I’ve had 4 injections this month so that adds to:   £3049.52

Dexamethasone 160mg                                                  £10.83* approx. costs

Adriamycin 68mg                                                          £187

Zometa 4mg                                                                   £17.17

Cost of supporting drugs

Lansoprazole 2 mg                                                       £1.86

Co-trimoxazole 960 mg                                               £7.06

Aciclovir 200 mg                                                         £12.50

Allopurinol 300 mg                                                     £1.06

Domperidone 10 mg                                                   13.88

Total drugs cost first cycle:                                £ 3300.88   

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